acoustic neuroma turned Neurofibromatosis type II

When they found my acoustic neuroma, they told me they don't know what causes one person to get and not another. Although this type of tumor makes up 10% of all brain tumors, it is uncommon for a person to have it on both sides. Theses were words that comforted me. I thought there was nearly no chance that I would have a tumor to deal with again. When I was told that they thought they might see something on the other side, I thought that they were mistaken. I mean we are talking about about something the size of millimeter that has to be really hard to really tell on an MRI. Did I tell you I am good a denial?

So, the little bit they didn't tell me when they found my acoustic neuroma was if they found it on the other side it would change my status and I would be considered a neurofibromatosis type II patient. As I write this now, I remember they had said something about genetic disorder that was very rare for people to have it without family history. Must have dismissed it until now. If you would like to see some scary stuff then surf the web for it. (some stuff is tame and some shows worst case)

Neurofibromatosis type II (NF2 for short)is a genetic mutation, not like X-man. No cool powers come with this. Turns out that I never really had acoustic neuromas but they were really schwannomas. Not sure what really makes the difference, but then again I'm not a doctor. I joke that now I'm a mutant. So hard to face, being told that. There was the question as to how I have this. They believe I am a new mutant. the stats I read at the time showed that on 70% of people that are classed as NF2 patients actually test positive for the mutation. Testing positive or not does not change how they treat you.